Help us to change the way the world looks at your disease and contribute to the development of new medicines for CAD and AIHA
Help Us to Change Conventional Wisdom
The public does not appreciate that CAD and AIHA can be severe, debilitating conditions. Join with your peers to help create an accurate and up-to-date picture of what it is like to live with CAD and AIHA by recording your responses to a health-related Quality of Life assessment
Help Us to Develop New Medicines
Today there are no medicines approved by the FDA for the treatment of CAD and AIHA. You can have a blood test for research to help create a deeper understanding of what goes wrong in the blood of patients with CAD and AIHA, so that new medicines can be developed to treat them.
Help Us to Teach Clinical Practitioners
Let the Registry help you integrate your medical records related to CAD and AIHA, making sure that relevant labs, treatments, and disease-related complications are identified, so that together we can better capture the severity of this disease and thereby change medical practice.
Every disease community should have a common, accessible patient registry.
We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community.
But registries are hard to maintain.
Registries are expensive. They need constant upkeep - usually by people with a lot of expertise in disease and data management. Often there are multiple competing registries for one disease, which leads to siloed, dead-end data that nobody can use.
Patient Crossroads is here to fix all of that.
Our CONNECT platform enables anyone - from individual patients to global research organizations - to collect and share disease data in a way that’s controlled, transparent and centered on patients’ best interests.